Bulgarian Huntington Association
We are an organization with a 9-year history, founded by families and friends of people living with rare diseases. Every year we support hundreds of families from all over the country.
Association BHA
Our Friends and Partners
We are working hard with the help of our friends and partners to fulfill the dream of hundreds of thousands of people living with rare diagnoses and their families for a safe place, where they can get support and understanding.
Association BHA
Support Us
Since 2015, we have been working to provide mobile services for people with rare diseases in the city of Sofia, and in 2017 we created the first information and advisory office for people with rare diseases. Although we are currently operating in a space of only 25 square meters, we have managed to support 1295 people with more than 107 different rare diagnoses, combining mobile and stationary services.
The people who need us are more than 150,000 in Sofia, and in the whole country about half a million people live with rare diagnoses, without access to specialized social support.
It is time to take a step forward in their care and build a Center to support families with rare diagnoses and create sustainability for our psychosocial support program helping people from all over the country.
Association BHA
Support center for families with rare diagnoses
Help us take a big step forward for all families living with rare diagnoses.
In order to carry out the planned reconstruction and successful completion of the Support Center, it is necessary to repair, furnish and equip an apartment? provided to us for free use by Sofia municipality? First step of our campaign to create the Center:
0
Equipment
9
Furniture
15
Renovation
100
Project
100
Premises
Association BHA
How Can You Support the Project?
Choose your cause! First step of our campaign to create the Center:
-
Repair of the Premises
Complete renovation of a room for mental health, physiotherapy and reception, plus ensuring
accessibility in the Center - installation of an electric ramp for people with wheelchairs.
Needed: BGN 81,000.
-
Furniture of the Center
Complete furnishing of the center, tailored to the needs of families affected by rare diagnoses.
Needed: BGN 47,000.
-
Physiotherapy Hall Equipment
All necessary equipment for physiotherapy and kinesitherapy of children and adults with rare
diagnoses.
Needed: BGN 35,000.
HOW TO SUPPORT US
Other Support Opportunities
Our donation account details:
Bulgarian-American Credit Bank
Account holder: Association "Bulgarian Huntington Association"
IBAN: BG98BGUS91601002931701
BIC: BGUSBGSF
Support us through one-time SMS and subscriptions with Latin text
With text DMS REDKI on number 17 777.
(for Telenor, VIVACOM and A1 subscribers) at a price of BGN 1.
Donate through the Platformata BG website:
See the campaign at platformata.bg by pressing the button below.
9
Years supporting families with rare diseases
7
Qualified specialists work for you.
10
Volunteers in the field of law, health care, social work.
100
Families supported each year.
700
Consultations provided every year.
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Bulgarian