We are an organization with a 9-year history, founded by families and friends of people living with rare diseases. Every year we support hundreds of families from all over the country.
We work tirelessly with the support of our friends and partners, to make a reality the dream shared by hundreds of people living with rare diagnoses and their families for a place, where they can receive the support and understanding they need.
Join us in our effort!
Since 2015, we have been working to provide mobile services for people with rare diseases in the city of Sofia. In 2017 we created the first information and advisory office for people with rare diseases. Although we are currently operating in a space of only 25 square meters, we have managed to support 1295 people with more than 107 different rare diagnoses, combining mobile and stationary services
More than 150,000 people need our support in Sofia. On a national level, more than half a million people live with rare diagnoses in Bulgaria, without access to specialized social support
It is time to take a step forward in their care and build a Center to support families with rare diagnoses and create sustainability for our psychosocial support program helping people from all over the country.
In order to carry out the planned reconstruction and successful completion of the Support Center, it is necessary to repair, furnish and equip a ground floor office provided to us for free use by Sofia municipality. The first step of our campaign is to create the Center:
Complete renovation of a room for mental health, physiotherapy and reception, plus ensuring
accessibility in the Center - installation of an electric ramp for people with wheelchairs.
Needed: BGN 81,000.
Complete furnishing of the center, tailored to the needs of families affected by rare diagnoses.
Needed: BGN 47,000.
All necessary equipment for physiotherapy and kinesitherapy of children and adults with rare
diagnoses.
Needed: BGN 35,000.
Bulgarian-American Credit Bank
Account holder: Association "Bulgarian Huntington Association"
IBAN: BG28BGUS91601002931700
BIC: BGUSBGSF
With text DMS REDKI on number 17 777.
(for Telenor, VIVACOM and A1 subscribers) at a price of BGN 1.
See the campaign at platformata.bg by pressing the button below.
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